A super well meaning friend tried to get me into a T1D support group but since I'm an adult, I'm not allowed. This saddens me, frustrates me and even angers me. How would the moms and dads in this group feel if their children were refused support just because they were an adult.
Type 1 Diabetes is a strange disease for different reasons.
I was misdiagnosed as type 2 due to age and weight, it took me going into diabetic ketoacidosis for a wonderful doctor to realize it.
Im finding this is a more and more common story, actually...
I don't know how long I've had it. I never got under control as a type 2 diabetic, even though I had a pre-diabetic a1c once, that would be the only time...
I think I always had blood sugar issues on some level, whether it was hypoglycemia etc. My father and my sister did as well...
We're still learning so much about the human body, so learning is part of it too...
But it's so easy to feel ostracized...
Most information people talk about as far as Diabetes is type 2... It just is... People don't understand the difference, and there are so many differences...
Another issue is doctors don't really understand that either. I haven't had blood sugar control in over 6 years because of all of these mis-diagnoses in part and not the right medication/treatment etc. Could i be better with food, of course, but that's not all of it... There are so many elements to having good numbers. You can eat the same food two days in a row and your blood sugar can have a vastly different reaction... It can be difficult to understand, but the frustration is doctors will make generalizations like, your blood sugar can't go up unless you're eating sugar... That's not true... Twilighting is where blood sugar goes up super high in the late evening/early morning... Just one example of this...
It's strange. It's weird.
So this whole post is because i got denied to get into a family T1D list, because I'm an adult. My children deal with diabetes as well. They don't have it, but they have to understand it. There is so much information I could glean, especially, as I understand there is a lot of information there. A friend tried to add me, as she was not under the impression I would be excluded. This situation has caused many tears tonight... and that is odd. Maybe I needed to cry. Maybe I needed to get out the hurt. It really bothered me. I just wanted to be accepted and maybe the pain of that hurts at this moment. I'm too old. I'm too young. I don't fit into the exact box I need to in order to receive or give help...
I was given other information, but one site was to childrenwithdiabetes.org. Geez, thank you. im sure tomorrow i will look at some of them and find a great deal. But until then, I'm just flabbergasted...
it's for families. My family deals with diabetes too!! I need to talk to my children about it too! it feels like I'm given one oar and a raft and i just don't have enough...
it reminds me of when T was diagnosed with autism 13 years ago. I was so young and I had no idea what to do. I was handed a list of resources and none of the phone numbers worked... It was so scary. But I perservered, my family perservered... And we will again. Ive had this for a couple of years... And why is this so raw? Why does this feel like I got diagnosed yesterday? Where is all of the anger coming from? I don't know.
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