A super well meaning friend tried to get me into a T1D support group but since I'm an adult, I'm not allowed. This saddens me, frustrates me and even angers me. How would the moms and dads in this group feel if their children were refused support just because they were an adult.
Type 1 Diabetes is a strange disease for different reasons.
I was misdiagnosed as type 2 due to age and weight, it took me going into diabetic ketoacidosis for a wonderful doctor to realize it.
Im finding this is a more and more common story, actually...
I don't know how long I've had it. I never got under control as a type 2 diabetic, even though I had a pre-diabetic a1c once, that would be the only time...
I think I always had blood sugar issues on some level, whether it was hypoglycemia etc. My father and my sister did as well...
We're still learning so much about the human body, so learning is part of it too...
But it's so easy to feel ostracized...
Most information people talk about as far as Diabetes is type 2... It just is... People don't understand the difference, and there are so many differences...
Another issue is doctors don't really understand that either. I haven't had blood sugar control in over 6 years because of all of these mis-diagnoses in part and not the right medication/treatment etc. Could i be better with food, of course, but that's not all of it... There are so many elements to having good numbers. You can eat the same food two days in a row and your blood sugar can have a vastly different reaction... It can be difficult to understand, but the frustration is doctors will make generalizations like, your blood sugar can't go up unless you're eating sugar... That's not true... Twilighting is where blood sugar goes up super high in the late evening/early morning... Just one example of this...
It's strange. It's weird.
So this whole post is because i got denied to get into a family T1D list, because I'm an adult. My children deal with diabetes as well. They don't have it, but they have to understand it. There is so much information I could glean, especially, as I understand there is a lot of information there. A friend tried to add me, as she was not under the impression I would be excluded. This situation has caused many tears tonight... and that is odd. Maybe I needed to cry. Maybe I needed to get out the hurt. It really bothered me. I just wanted to be accepted and maybe the pain of that hurts at this moment. I'm too old. I'm too young. I don't fit into the exact box I need to in order to receive or give help...
I was given other information, but one site was to childrenwithdiabetes.org. Geez, thank you. im sure tomorrow i will look at some of them and find a great deal. But until then, I'm just flabbergasted...
it's for families. My family deals with diabetes too!! I need to talk to my children about it too! it feels like I'm given one oar and a raft and i just don't have enough...
it reminds me of when T was diagnosed with autism 13 years ago. I was so young and I had no idea what to do. I was handed a list of resources and none of the phone numbers worked... It was so scary. But I perservered, my family perservered... And we will again. Ive had this for a couple of years... And why is this so raw? Why does this feel like I got diagnosed yesterday? Where is all of the anger coming from? I don't know.
Wednesday, April 6, 2016
Sunday, October 11, 2015
Gastroparesis --- food is my enemy
I have been meaning to post and I know that I have been lax in doing so....
I have gastroparesis....
Sometimes I can eat food, sometimes only liquids....
I have to avoid fiber and fat while watching carbs. I am overwhelmed.... The more I read, I know where to start, but I realize it will not be easy. Too much potassium, too much acid and such are also things to avoid. It's really trial and error and I'm thankful to have some solids as there is a fair amount of people with this issue that are tube fed etc or have not had solids in years.... I am learning and it will be ok.... And a lot of people don't understand it, but I am blessed with a great family and friends.
Namaste and love to all
Intelligent airhead
Friday, July 31, 2015
Restaurant Week Survival Kit Part One
Well it's that time of the year again. Time for restaurant patrons everywhere to venture out into the world of fine foods to sample the offerings of countless DFW restaurants at a very affordable price. As a server it is CRAZY NUTS BUSY! It's an oasis of boom in an otherwise boomless time of year.But with the crazy busy comes exhaustion, headaches, sleeplessness, soreness and, um,.. uh... chafing. We've all suffered from at least one of these restaurant week ailments and I happen to have just what you need to get through relatively unscathed.
So, without further lead in, I present to you my Restaurant Week Survival Kit
Your feet will be sore. Very sore. You will be in excruciating pain and you are going to go back the next day and do it again. For several weeks. The one part of your body you're going to need to take care of more than anything else is your feet and the way I'm doing it is with PanAway. (You'll hear this a lot.)
A couple of drops mixed with some olive oil and a solid foot massage at the end of a long shift and you'll be ready to do it again the next day.
This same mixture works well for... um.. the other pain that comes with a solid day of working on your feet. Swamp somethingorother. While the foot pain is the most important to upkeep THIS bugger is the most embarrassingly painful. Once again, though, some PanAway, a couple of drops of olive oil and a massage before bedtime and the morning will bring a freshness previously unknown to restaurant week waiters.
One oil in part one to deal with the physical pains of the week, join my later this weekend as I let you in on the few oils in my arsenal that I'm going to use to get me through the stress, sleeplessness and the lack of energy that comes at the end of restaurant week.
Sunday, June 21, 2015
Wing pain... Ignoring things doesn't make them go away, unfortunately... 8/
I liken myself to a butterfly a lot... Maybe that's why it's one of my sobriquets... My left arm has been in a lot of pain... I actually have been diagnosed with fibromyalgia and psoriatic arthritis. Not sure which diagnosis is correct. I haven't been treated for either in years as I decided I didn't want to have them... Lol, it sounds silly I suppose... Poof, can I take them back for a full refund? No? Oh... 8)
I've had my share of other issues, to be sure, but I know I also need to focus on different aspects of my health... More and more of those darned aspects keep showing up though... They need to take a number 8).
My left arm has been really painful lately. It's already affected by my seizures sometimes (less tone and movement)... Now, I'm finding ginger essential oil is really helping it... PanAway has helped as well... But it's just taking the edge off, but I'll take any relief 8) I'm continuing to work on a better recipe, but for now, it's a good start.
One day at a time, but it seems like this may be one of my next focuses... I'm still struggling to get a couple of other tests done (insurance stress mainly) for gastroparesis and for epilepsy, but we'll get there... One step at a time 8) There's a beauty in that... I know that sometimes things happen slower than we want them to, because this way we can focus on each one a little bit more at a time... Also, it's quite overwhelming... I'm picky about medications too, because I don't want to be on more than I need to be...
Life is good and love is better. Love of myself and working on taking care of myself as much as possible is making me feel even better. It doesn't always help a whole lot, but it is important in the longrun.
To all that read my blog, Namaste. May you be blessed, peaceful and healthy.
I've had my share of other issues, to be sure, but I know I also need to focus on different aspects of my health... More and more of those darned aspects keep showing up though... They need to take a number 8).
My left arm has been really painful lately. It's already affected by my seizures sometimes (less tone and movement)... Now, I'm finding ginger essential oil is really helping it... PanAway has helped as well... But it's just taking the edge off, but I'll take any relief 8) I'm continuing to work on a better recipe, but for now, it's a good start.
One day at a time, but it seems like this may be one of my next focuses... I'm still struggling to get a couple of other tests done (insurance stress mainly) for gastroparesis and for epilepsy, but we'll get there... One step at a time 8) There's a beauty in that... I know that sometimes things happen slower than we want them to, because this way we can focus on each one a little bit more at a time... Also, it's quite overwhelming... I'm picky about medications too, because I don't want to be on more than I need to be...
Life is good and love is better. Love of myself and working on taking care of myself as much as possible is making me feel even better. It doesn't always help a whole lot, but it is important in the longrun.
To all that read my blog, Namaste. May you be blessed, peaceful and healthy.
Wednesday, May 27, 2015
Checking in
The weight is slowly coming off. I have lost 5 pounds since starting Weight Watchers over a month ago. So much I could do better, but working on good habits...
I went to my first water aerobics class in years yesterday. (Readers: Please, Please note that very careful care must be taken for those with seizure disorders. If you have seizures, please work with your doctors and family to find the best exercise regimin for you. I am only going on days that are reasonably good, as I have partial and complex partials at times. Being in a pool or tub is a risk as you need to make sure someone can get you out, should you go under while having a seizure and you can't react. We take certain precautions and deciding whether that day is a good day to go or not.) I went to Moving really Matters in Allen. It is for those who have arthritis, are in physical therapy, or have any mobility issues at all, or want to go at a slower pace. I have not been exercising much at all with all of these health issues and I know that's a key piece to losing weight. I need to get more active. Without Trina, I wouldn't have much energy at all, but I am able to clean more and exercise. I am excited about that 8). I want to do things, I want to be more active. I don't want life to pass me by 8) And with prayer, sheer will, strength, and the love of those around me and the love to myself, I can do that. The class was very slow, but It's what I need. I'm learning how to use my limbs again, and sometimes that's daily (it doesn't necessarily build, my body might forget everything it learned yesterday, which is why im not a good physical therapy candidate), but this is helping 8) Today, my body is looser, and less pain in certain joints... Yay!!!!
Emotionally, it's one day at a time. Journaling is helping a great deal. I often get frustrated that I can't emotionally heal super fast, but that is life too 8) Slow and steady wins the race. Anxiety and my diseases can be quite the catch 22. Anxiety causes me to feel worse and when I feel worse, I feel more anxiety. Meditation helps and working to be more calm in everything helps a great deal, but I have a ways to go 8) I can do this though 8)
Sleep wise, I slept 5 hours in a row Monday night!!! I usually wake up every hour or two as of late, so I am so very excited by this 8).
I'm really encouraged by life changes I'm making, drinking more water, watching what I eat, using some essential oils (Another message: If you have epilepsy, some oils are contraindicated for us. They can cause convulsing in those predisposed to them. Please start with one at a time, just to make sure that's a good oil for your body 8) --- More on that soon 8)).
Life is good and we're trucking along to the end of the year. I can't believe it's come so quickly!!!
Be well and peace to you all!
I went to my first water aerobics class in years yesterday. (Readers: Please, Please note that very careful care must be taken for those with seizure disorders. If you have seizures, please work with your doctors and family to find the best exercise regimin for you. I am only going on days that are reasonably good, as I have partial and complex partials at times. Being in a pool or tub is a risk as you need to make sure someone can get you out, should you go under while having a seizure and you can't react. We take certain precautions and deciding whether that day is a good day to go or not.) I went to Moving really Matters in Allen. It is for those who have arthritis, are in physical therapy, or have any mobility issues at all, or want to go at a slower pace. I have not been exercising much at all with all of these health issues and I know that's a key piece to losing weight. I need to get more active. Without Trina, I wouldn't have much energy at all, but I am able to clean more and exercise. I am excited about that 8). I want to do things, I want to be more active. I don't want life to pass me by 8) And with prayer, sheer will, strength, and the love of those around me and the love to myself, I can do that. The class was very slow, but It's what I need. I'm learning how to use my limbs again, and sometimes that's daily (it doesn't necessarily build, my body might forget everything it learned yesterday, which is why im not a good physical therapy candidate), but this is helping 8) Today, my body is looser, and less pain in certain joints... Yay!!!!
Emotionally, it's one day at a time. Journaling is helping a great deal. I often get frustrated that I can't emotionally heal super fast, but that is life too 8) Slow and steady wins the race. Anxiety and my diseases can be quite the catch 22. Anxiety causes me to feel worse and when I feel worse, I feel more anxiety. Meditation helps and working to be more calm in everything helps a great deal, but I have a ways to go 8) I can do this though 8)
Sleep wise, I slept 5 hours in a row Monday night!!! I usually wake up every hour or two as of late, so I am so very excited by this 8).
I'm really encouraged by life changes I'm making, drinking more water, watching what I eat, using some essential oils (Another message: If you have epilepsy, some oils are contraindicated for us. They can cause convulsing in those predisposed to them. Please start with one at a time, just to make sure that's a good oil for your body 8) --- More on that soon 8)).
Life is good and we're trucking along to the end of the year. I can't believe it's come so quickly!!!
Be well and peace to you all!
Thursday, April 30, 2015
Trina
I had mentioned Trina in a previous blog post... I am going weekly to have an Artificial Pancreas Treatment. They give you quite a lot of insulin via IV impulses while feeding you tons of food and drinks to keep the blood sugar up. I'm already seeing some benefits. I have brittle diabetes (meaning uber uncontrolled... Before treatment, my blood sugar might go to 350 just by looking at chocolate cake... and then with insulin, it drops down to 50 very quickly by most's standards. Not that bad, but close, nonetheless 8D. My fasting would be around 200... (under 100 is the goal for nondiabetics, 120 is mine...)
After treatment, I still have some high numbers, but they are less crazy... I have more energy (thank Goodness, because we're moving and I got to go out with friends, etc, and 3 weeks ago, all of this would be very difficult. I have other illnesses, as devout readers may know... The interesting thing is erratic blood sugar causes me to have more seizures, so this helps a great deal 8D. Im not having quite as many seizures due to blood sugar.
I'm really excited about Trina. Type 1 diabetes is one of those diseases that is lifelong and they can help you (give you insulin) but this can help reverse and/or prevent complications common to diabetes such as retinopathy and neuropathy... My neuropathy on my right side is so much better!!!! It's really quite exciting 8D. I'm so thankful for any help and I'm so thankful for this breakthrough 8D.
If you would like more information, here is the link. I only know so much, as I am a newbie 8D
http://www.trinahealth.com/
I plan to post as I go with more positive information. I have been 4 times, and I am looking at any small changes as so much progress. My insulin pump is something that has helped to a point, but just not to the point of calming my wacky numbers... Nothing else was really working, watching carbs, different meds, etc... This gives me hope.
Also, this helps those with type 2 as well!!! Most of the others who get treatment there are type 2.
This is FDA approved, so that's a good thing as well. Insurances are a bit slower to get on board, even though I've found quite a few success stories... Length of life is increased and diabetes complications can be reversed in some cases. I recently met someone who couldn't walk without a walker until Trina... I totally understand it's not for everyone, but for those who have tried so much and who are at high risk for many diabetes complications and possible early death (due to higher numbers), it is something to consider 8).
After treatment, I still have some high numbers, but they are less crazy... I have more energy (thank Goodness, because we're moving and I got to go out with friends, etc, and 3 weeks ago, all of this would be very difficult. I have other illnesses, as devout readers may know... The interesting thing is erratic blood sugar causes me to have more seizures, so this helps a great deal 8D. Im not having quite as many seizures due to blood sugar.
I'm really excited about Trina. Type 1 diabetes is one of those diseases that is lifelong and they can help you (give you insulin) but this can help reverse and/or prevent complications common to diabetes such as retinopathy and neuropathy... My neuropathy on my right side is so much better!!!! It's really quite exciting 8D. I'm so thankful for any help and I'm so thankful for this breakthrough 8D.
If you would like more information, here is the link. I only know so much, as I am a newbie 8D
http://www.trinahealth.com/
I plan to post as I go with more positive information. I have been 4 times, and I am looking at any small changes as so much progress. My insulin pump is something that has helped to a point, but just not to the point of calming my wacky numbers... Nothing else was really working, watching carbs, different meds, etc... This gives me hope.
Also, this helps those with type 2 as well!!! Most of the others who get treatment there are type 2.
This is FDA approved, so that's a good thing as well. Insurances are a bit slower to get on board, even though I've found quite a few success stories... Length of life is increased and diabetes complications can be reversed in some cases. I recently met someone who couldn't walk without a walker until Trina... I totally understand it's not for everyone, but for those who have tried so much and who are at high risk for many diabetes complications and possible early death (due to higher numbers), it is something to consider 8).
Sunday, April 19, 2015
Walk on the wild side
As some who may know me, I have epilepsy. I was diagnosed a year ago. On this journey, I have learned numerous things about epilepsy.... A few of which are...
1. There are soooo many misconceptions!! Many people (and dare I say doctors, even neurologists) don't know all that much about the ins and outs of it. There are over 40 types of epilepsy. It is a spectrum of disorders, and no two are exactly alike. You can be diagnosed with epilepsy at any age.
2. 70 percent of people don't know why they have it. There are ties to PTSD, brain injuries, anesthesia, and such, but some may never know for sure.
3. Seizures can cause anything from speech issues, affecting taste smell and/or hearing, twitching, random movements, the inability to move, to grand mal seizures.
4. It's a scary situation. And it can be limiting. If you are uncontrolled in seizures, you will be told not to climb ladders, step stools, take a bath on your own, cook unattended, etc. You are also not allowed to drive per most states until you are 3, 6, or 12 months seizure free.
5. Post ictal (after affects) of seizures can last a few minutes to days. You can feel discombobulated, forget many simple pieces of information, including where you currently are, who you are with, etc. You can have Todd's Paresis, which is the paralysis of arms, legs, etc. This can last a short time or long time. Seizures are extremely tiring. It feels like a marathon...
6. Medicines do not always control seizures. In fact, I have seen numbers in the 40 percent range that are uncontrolled (I am very uncontrolled right now). As years go by, doctors start to mention VNS therapy (where an object is implanted to counter act the seizure) or even brain surgery... I speak with so many people at this crossroads on my Epilepsy facebook groups.
7. Seizures can look like a stroke. (many of mine do). My left side is weaker than my right. Sometimes I can't even feel my left side, as it has been numb in some form since last February when this started. Walking can be difficult at times and some are unable to walk eventually.
8.You CAN die from epilepsy. While death in epilepsy doesn't happen frequently, epilepsy is a very serious condition and individuals do die from seizures. The most common cause of death is SUDEP or Sudden Unexpected Death in Epilepsy. While there is a lot we still don’t know about SUDEP, experts estimate that one out of every 1000 people with epilepsy die from SUDEP each year. People can also die from prolonged seizures (status epilepticus). About 22,000 to 42,000 deaths in the US each year occur from these seizure emergencies.
(www.epilepsy.com)
9. Epilepsy affects over 3 million Americans of all ages – more than Multiple Sclerosis, Cerebral Palsy, Muscular Dystrophy, and Parkinson’s Disease combined.
(Please know, much of this is what I know... There are many other symptoms and after affects, but I am not as familiar with the ones I don't live with... )
One organization has helped me more than any other in this time. They help with Epilepsy education in schools, art therapy (I have participated in this 8)), camps for children with epilepsy, free and discounted health care for those with epilepsy, etc. That is Epilepsy Foundation of Texas 8)
http://eftx.org/
Yesterday, our family participated in the Epilepsy stroll at the Fort Worth Zoo!!! I really wasn't quite sure what to expect, but what I have now is an encouraged heart, hope and wonderful memories!!!
Everyone met outside of the zoo, registered and got to dance, participate in activities, and get some good information. We got there early (some of the first to register) so we had plenty of time to enjoy everything. The weather was good for most of the day (some terrible storms were in and out and threatening to rain on our parade.. but they didnt 8)). I got so much information about good doctors, possible treatments, tons of literature (Seriously, i find more out daily about epilepsy. The medical community is continuously learning more). We danced and danced... A few things that might make you laugh..... I am not all that current with most music (unless Texas Country or anything on American Idol counts 8)). I found out I cannot do the Wobble Dance, Uptown Funk etc... But teaching Kegan to kind of do the Uptown Funk dance was fun 8). I was standing with Kegan while Dave took a picture for another group. I look around for Avery and he was doing the Macarena on the "dance floor". He had such a blast too. Both the boys got to dance a lot... I made Avery dance to Twist and shout with me... (I wobbled or tried, lol...) Imagine a bunch of epileptics dance it to "shake it a baby, twist and shout... 8D" but it matches our humor about it too. Gotta laugh and make the best of it 8) So amazingly fun 8) I am so self conscious of my seizures, but I didn't have to be there, not even a little bit 8) I was safe. 8)
The walk wasn't a 5k... It wasn't even a walk all together... This is the most ingenious idea ever... You just get to walk in the zoo with friends and family at your leisure 8). Our family had a wonderful time and we made some awesome memories. My oldest was unable to go at the last minute (he had an orchestra event to attend), but we're glad we had this opportunity, to raise money for a wonderful cause, to teach others about this disease, to learn more, and to care for those in the Epilepsy community.
So, without a doubt, this was a beautiful, wonderful day!!!! I am so thankful and glad my family is supportive 8) There are so many who don't have that 8( and I send prayers, peace, love and light to you if you are in this situation.
A few more words to say in support of this wonderful cause------ Rock N Stroll!!!!!!!!!! (the theme for the walk 8D)
(For those dealing with this disease, or think they might be, I would like to speak to you for a moment... Don't be afraid to find a new doctor. It is important to work well with your doctor and for them to understand you and your communication style. If you are looking for a doctor, eftx does have a list and they can help. Also, if you are uninsured, please consider reaching out to them so that you are under a doctor's care. Just try to see if you qualify) This is a scary disease but you are not alone!!!!
1. There are soooo many misconceptions!! Many people (and dare I say doctors, even neurologists) don't know all that much about the ins and outs of it. There are over 40 types of epilepsy. It is a spectrum of disorders, and no two are exactly alike. You can be diagnosed with epilepsy at any age.
2. 70 percent of people don't know why they have it. There are ties to PTSD, brain injuries, anesthesia, and such, but some may never know for sure.
3. Seizures can cause anything from speech issues, affecting taste smell and/or hearing, twitching, random movements, the inability to move, to grand mal seizures.
4. It's a scary situation. And it can be limiting. If you are uncontrolled in seizures, you will be told not to climb ladders, step stools, take a bath on your own, cook unattended, etc. You are also not allowed to drive per most states until you are 3, 6, or 12 months seizure free.
5. Post ictal (after affects) of seizures can last a few minutes to days. You can feel discombobulated, forget many simple pieces of information, including where you currently are, who you are with, etc. You can have Todd's Paresis, which is the paralysis of arms, legs, etc. This can last a short time or long time. Seizures are extremely tiring. It feels like a marathon...
6. Medicines do not always control seizures. In fact, I have seen numbers in the 40 percent range that are uncontrolled (I am very uncontrolled right now). As years go by, doctors start to mention VNS therapy (where an object is implanted to counter act the seizure) or even brain surgery... I speak with so many people at this crossroads on my Epilepsy facebook groups.
7. Seizures can look like a stroke. (many of mine do). My left side is weaker than my right. Sometimes I can't even feel my left side, as it has been numb in some form since last February when this started. Walking can be difficult at times and some are unable to walk eventually.
8.You CAN die from epilepsy. While death in epilepsy doesn't happen frequently, epilepsy is a very serious condition and individuals do die from seizures. The most common cause of death is SUDEP or Sudden Unexpected Death in Epilepsy. While there is a lot we still don’t know about SUDEP, experts estimate that one out of every 1000 people with epilepsy die from SUDEP each year. People can also die from prolonged seizures (status epilepticus). About 22,000 to 42,000 deaths in the US each year occur from these seizure emergencies.
(www.epilepsy.com)
9. Epilepsy affects over 3 million Americans of all ages – more than Multiple Sclerosis, Cerebral Palsy, Muscular Dystrophy, and Parkinson’s Disease combined.
(Please know, much of this is what I know... There are many other symptoms and after affects, but I am not as familiar with the ones I don't live with... )
One organization has helped me more than any other in this time. They help with Epilepsy education in schools, art therapy (I have participated in this 8)), camps for children with epilepsy, free and discounted health care for those with epilepsy, etc. That is Epilepsy Foundation of Texas 8)
http://eftx.org/
Yesterday, our family participated in the Epilepsy stroll at the Fort Worth Zoo!!! I really wasn't quite sure what to expect, but what I have now is an encouraged heart, hope and wonderful memories!!!
Everyone met outside of the zoo, registered and got to dance, participate in activities, and get some good information. We got there early (some of the first to register) so we had plenty of time to enjoy everything. The weather was good for most of the day (some terrible storms were in and out and threatening to rain on our parade.. but they didnt 8)). I got so much information about good doctors, possible treatments, tons of literature (Seriously, i find more out daily about epilepsy. The medical community is continuously learning more). We danced and danced... A few things that might make you laugh..... I am not all that current with most music (unless Texas Country or anything on American Idol counts 8)). I found out I cannot do the Wobble Dance, Uptown Funk etc... But teaching Kegan to kind of do the Uptown Funk dance was fun 8). I was standing with Kegan while Dave took a picture for another group. I look around for Avery and he was doing the Macarena on the "dance floor". He had such a blast too. Both the boys got to dance a lot... I made Avery dance to Twist and shout with me... (I wobbled or tried, lol...) Imagine a bunch of epileptics dance it to "shake it a baby, twist and shout... 8D" but it matches our humor about it too. Gotta laugh and make the best of it 8) So amazingly fun 8) I am so self conscious of my seizures, but I didn't have to be there, not even a little bit 8) I was safe. 8)
The walk wasn't a 5k... It wasn't even a walk all together... This is the most ingenious idea ever... You just get to walk in the zoo with friends and family at your leisure 8). Our family had a wonderful time and we made some awesome memories. My oldest was unable to go at the last minute (he had an orchestra event to attend), but we're glad we had this opportunity, to raise money for a wonderful cause, to teach others about this disease, to learn more, and to care for those in the Epilepsy community.
So, without a doubt, this was a beautiful, wonderful day!!!! I am so thankful and glad my family is supportive 8) There are so many who don't have that 8( and I send prayers, peace, love and light to you if you are in this situation.
A few more words to say in support of this wonderful cause------ Rock N Stroll!!!!!!!!!! (the theme for the walk 8D)
(For those dealing with this disease, or think they might be, I would like to speak to you for a moment... Don't be afraid to find a new doctor. It is important to work well with your doctor and for them to understand you and your communication style. If you are looking for a doctor, eftx does have a list and they can help. Also, if you are uninsured, please consider reaching out to them so that you are under a doctor's care. Just try to see if you qualify) This is a scary disease but you are not alone!!!!
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